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Authentic Value: Being Known in e-Patient Communities

by e-Patient Dave deBronkart




About e-Patient Dave deBronkart

Diagnosed in 2007 with Stage IV, Grade 4 kidney cancer, e-Patient Dave deBronkart learned it had metastasized to both lungs, several bones, and his tongue, and his median survival time was 24 weeks. Using the internet in every way possible, he learned everything he could, joined an expert patient group on ACOR, built a social network on CaringBridge, and shared his online medical records with anyone who could help. And he beat the odds.

He's since become a healthcare blogger and joined the e-patient movement, where he's one of the most outspoken advocates for patient engagement. He is also a Founding Co-Chair of the Society for Participatory Medicine. Last month he launched a healthcare consulting practice, and the September 09 issue of Health Leaders features him in the cover story, "The Patient of the Future."




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